Welcome to the World Warrior! You are meant to be here!
Warrior By Blood
We may not have chosen
this warrior road but
We never have to walk it alone
together we are strong!
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You are
not
Alone
When the Words Change Everything... Hearing that your child has a serious illness can feel like the air has been pulled from the room. In a single moment, joy can collide with fear, and the future may seem uncertain. That's when we master the Art of the Pivot.
We Got You!
Welcome to the World Warrior! You are meant to be here!
You are going
to be fine!
“Brave doesn’t mean not scared. Brave means we keep going. Your story isn’t over — it’s just getting stronger.”
Welcome to the World Warrior! You are meant to be here!
Welcome to the World Warrior! You are meant to be here!
Welcome to the World Warrior! You are meant to be here!
OUR
next
GREAT events
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My Next Appearance will be March 28 at the Re-imagining Pain through Art Exhibit at the Newark Museum, sharing my spoken word piece, “We Are Warriors” from 1pm to 4pm.Â
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Spaces are limited so please Register now!
Hope to see you there!
Frequently asked questions Frequently asked questions
Sickle Cell Disease is an inherited blood disorder that affects hemoglobin — the protein in red blood cells that carries oxygen. Instead of being round and flexible, some red blood cells become crescent or “sickle” shaped. These cells can block blood flow, causing pain, infection risk, fatigue, and other complications.
But a diagnosis does not define a child’s future. With proper care, education, and advocacy, warriors can thrive.
Bloodless Medicine is a medical approach that focuses on treating patients avoiding donor blood transfusions by optimizing the patients own blood, improving blood health, and minimizing the need.
It uses strategies like:
- Optimizing nutrition (iron, folate, B12)
- Stimulating the body’s own red blood cell production
- Minimizing blood loss during procedures
- Careful monitoring and early intervention
It is not “doing nothing.” It is proactive, strategic, and evidence-based care.
Yes. Depending on the situation, doctors may consider:
- Erythropoiesis-stimulating agents
- Oxygen therapy
- IV fluids
- Hydroxyurea therapy
- Newer disease-modifying therapies
The goal is always to improve oxygen delivery while protecting long-term health.
Preparation is key. Families can:
- Discuss preferences with their hematology team ahead of time
- Request care plans be documented in medical records
- Keep copies of medical history and antibody information
- Build care relationships with hospitals familiar with blood management strategies
Advocacy is strongest when done before a crisis.
No. We are pro-education, pro-informed-consent, and pro-family empowerment.
Transfusions are a matter of conscience and personal choice. We believe families deserve to:
- Understand risks and benefits
- Know all available options
- Be included in medical decisions
- Have their values respected
Our Mission
advocacy & health literacy
Our mission is to advocate for individuals living with sickle cell disease by promoting education, expanding treatment options, and supporting access to compassionate, evidence-based care, including bloodless medicine programs.
Our warriors
who we serve
Individuals living with sickle cell disease Families and caregivers Healthcare professionals seeking patient-centered approaches Communities needing education and support
Our supporters
We are currently securing Founding Impact Capital to establish the infrastructure, hospital partnerships, clinical protocols, and legal framework for a scalable Bloodless Medicine & Patient Blood Management initiative. Contributions at this stage are not yet tax-deductible.
© 2026 Welcome to the World Warrior Foundation Inc
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We are currently securing Founding Impact Capital to establish the infrastructure, hospital partnerships, clinical protocols, and legal framework for a scalable Bloodless Medicine & Patient Blood Management initiative.
Contributions at this stage are not yet tax-deductible.
